Sometimes I hate life. Then I get over it.
This last few weeks however has been trying.
It started out easily. Nate and I had dual eye exams. My doctor was great. He’s very personable and we were just having a good ole time. Nate asked during my turn if we could go to Starbucks. I told him only if the dilation didn’t make me have a migraine since I’m prone to them.
The Cpt asked me a few questions regarding them and then said he wanted me to go off post for a referral. Apparently there was a concern that I might have swollen optic nerves which can lead to blindness. He didn’t have the equipment needed to check.
That appointment was on a Friday. My next was on the following Monday. The pictures were taken, I was re-dilated, and it was confirmed that my optic nerves were swollen. But was it IIH or an abnormally normal thing for my eyes? Maybe I just had big optic nerves?
They needed an MRI.
Just two weeks later I was sitting through an hour and a half MRI.
The next week was another eye appointment saying that my MRI was normal. The only way to confirm it was through a spinal tap. After a lot of fancy footwork concerning Tricare and incorrectly put in referrals I ended up with a spinal tap that same week.
It seems I have IIH. I talked to my doctor and he told me he could only prescribe a diuretic. Which brings me to a problem. I can’t take meds for long. I have horrible reactions to medications. I don’t know if there is a name for people who are hyper sensitive to prescription drugs but I am. Hell it runs in my family. I can squeak by normally with things like a zpack but anything that’s long term is asking for a slew of health problems to open up.
When I asked about other options he told me to see a neurologist. The only other option might be to put a shunt in to drain the spinal fluid. That certainty doesn’t sound appealing! But sadly it might be better than playing Russian Roulette with meds.
The really sad thing about all this?
This started a decade ago. After I had Nate I started experiencing massive migraines. I had MRI’s, CT scans and even a hearing test before being told it was stress headaches.
I’ve been losing a 1/4 point in my vision every year and it might have been prevented if we had caught it earlier. Maybe now I’ll be able to be a candidate for corrective surgery in a few years?
Who knows things might start looking better in the future. Pun intended 😉